The survey is now closed.
The Rare Diseases Storyteller's Perspective survey has reopened for the European Conference on Rare Diseases & Orphan Products. Feedback will now be accepted until Sunday, May 18th.
STORYTELLERS WANTED:
Persons Living with a Rare Disease
Family/Caregivers
Patient Organizations
Healthcare Professionals
Pharmaceutical Industry
Media Consultants
Journalists
Artists
Other (please specify)
Please consider taking part if you've participated in the creation or sharing of a rare disease story, your own or someone else's, in a personal, public or professional context. To share a rare disease story, perhaps you blog, have written a book, made a video or given a talk. Regardless of your approach, all storytellers are invited to contribute their views. The more perspectives the richer the outcomes. Click for more information and to take part.
The survey deadline has been extended until Sunday, May 18th.
Click here to take survey
