Download free copies of the RARE Toolkits on storytelling:
Co-produced by Global Genes & the My Normal Project
Co-produced by Global Genes & the My Normal Project
- Using Storytelling to Raise Awareness for Your Rare Disease
- How to Promote Your Rare Disease Story Through Social Media
Storytelling for Health "How-To" handouts:
- Using Storytelling to Raise Awareness for Your Rare Disease
- How to Promote Your Rare Disease Story Through Social Media
- Considerations for Organizations Seeking Real-Life Stories
- 10 Ideas for Getting Started on Your Story
Listen to a voice record of the family storytelling process to make the Emma's Garden: Growing with Gaucher digital story:
A letter to my parents marking Rare Disease Day 2014, "Join Together for Better Care."
You gave me Gaucher but I hope you know there isn’t a day that I’ve blamed you for our genes.
