Storymaking

Download free copies of the RARE Toolkits on storytelling:
Co-produced by Global Genes & the My Normal Project

• Using Storytelling to Raise Awareness for Your Rare Disease

• How to Promote Your Rare Disease Story Through Social Media 

Storytelling for Health "How-To" handouts:

• Considerations for Organizations Seeking Real-Life Stories 

• 10 Ideas for Getting Started on Your Story

Listen to a voice record of the family storytelling process to make the Emma's Garden: Growing with Gaucher digital story:

A letter to my parents marking Rare Disease Day 2014, "Join Together for Better Care."

You gave me Gaucher but I hope you know there isn’t a day that I’ve blamed you for our genes.

Visit the My Normal Resources page for storytelling galleries & other resources