Full story published on the blog for Health Care Social Media Canada (#hcsmca)
In the chat we will cover:
- T1. How do patient stories impact the rare disease community?
- T2. How can we better value patient stories and respond to the insights shared?
- T3. What benefits should patients look for from contributing their stories?
- T4. What stories are missing from the rare disease community and how can we encourage different voices?
Learn more about this #hcsmca twitter chat: Preparing for #RareDiseaseDay: Do stories change anything? by Emma Rooney (@blumencasey)