Rare Disease Day is coming up, February 29th, 2016. This is a great time of year to join together with others from the rare disease community all over the world and contribute your rare disease story of what it means to live with a rare disease. Fittingly, the theme for this year's event is patient voice.
If you are looking for tips on how to share your story with impact, especially using social media to spread your message, watch these two recent webinars:
- RARE Webinar: World Rare Disease Day 2016 Planning presented by Global Genes
- Maximising Social Media around Rare Disease Day presented by RareConnect, EURORDIS
You can contribute your story to the official Rare Disease Day Website or visit the My Normal Resources Page for a full list of places to share your rare disease story online.
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