Monday, October 31, 2016

Skeletons at My Desk

Can an engaged patient be scared?

Why learning about advancing research into Gaucher disease and Parkinson's has left me feeling vulnerable and what I'm doing to empower myself. 

For an introduction to Gaucher disease read Gaucher Disease: Opening a Window Into More Common Disorders from the NIH's National Human Genome Research Institute.

Thank you to the Medicine X conference presenters who got me thinking about science and the role patients can play in moving research forward. Corrie Painter you're an inspiration!

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