Monday, November 23, 2015

Storytelling Tip - November 23

"There are people with narcolepsy all over the place. 1 in every 2,000 people have narcolepsy. So it's really not that rare but it's invisible...By me telling my story, other people realized that they weren't alone either. See, we don't always have a cure for the diseases, but we do have a cure for the loneliness today," says Julie Flygare, the founder of Project Sleep & author of Wide Awake and Dreaming: A Memoir of Narcolepsy. Julie's tip from experience,

"Prescribe another patient."

-Julie Flygare, Stanford Medicine X 2015

If you could be that patient, that shares your health story to support others in feeling less isolated, try Julie's storytelling advice, "Begin Anywhere–Just Begin." Julie offers her perspective and other practical suggestions in the Using Storytelling to Raise Awareness for Your Rare Disease RAREToolkit.  

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